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This girl survived one of the deadliest disorder called the harlequin syndrome !

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harlequin syndrome
This girl survived one of the deadliest disorder called the harlequin syndrome!
hunter steinitz -www.tumblr.com
image source – tumblr

A girl from Pittsburgh, United States named Hunter Steinitz has survived from one of the deadliest disease. Steinitz suffered form a severe genetic disorder known as the Harlequin Type Itchthyosis (Also known as Harlequin syndrome). The chances of having Harlequin syndrome is 1 in 300000 births.

In harlequin syndrome disease the skin gets thicken and white patches appears all over the body. The skin becomes vulnerable to dehydration and infection which may result in death. Many cases of this disease result in death.

article-hypescience.com
source -hypescience

However Hunter Steinitz was lucky one to survive this disease. She was born in 1994 she is one of the few survivors of this disease.
She is doing fine now but still her life isn’t as easy as she has no body hair she has to wear a wig and she cannot close her eyes because of her thick skin.

Her personal life was also not as well as she was somewhat alienated during her school. She later managed to get some friends by letting everyone in her school know about her condition and telling people that it is not infectious.

Steinitz has now somewhat used to live with this condition. She uses different lotions to keep her skin moisturized.
Steinitz has also been giving some motivational talks to people. She was also featured on the National Geographic Channel show Extraordinary Humans.

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